Earlier this week, the ALS Association announced the largest single gift in our organization’s history -- $58 million! This gift from the late philanthropist Hugh Hoffman will significantly advance promising ALS research and access to ALS patient care. Mr. Hoffman was a Cincinnati native who passed away in March 2023 at the age of 91. When he was 11, he lost his father, Herbert, to ALS. The impact was so great on him that, at the end of his life, he wanted to ensure other families do not lose their loved ones to ALS. This contribution is specifically designated to [...]
On behalf of the Michelle Gargaro Foundation and Gargaro family, I would first like to wish everyone a very joyous and peaceful holiday season. Also, a huge thank you to everyone who helped support our work this past year of providing support and assistance to the ALS community. You were a huge part of the foundation for giving in the fight against ALS that we established in our first year of fundraising events. Recapping 2022 (actually going back to September 2021) our foundation was able to host our first two events after the covid pandemic passed. In September of 2021, [...]
Today, November 16, 2023, the Michelle Gargaro Foundation announced that it has made a donation in the amount of $1,000.00 to the ALS Association as part of Minnesota’s “Give To The Max” day. The donation is part of the ongoing effort of the foundation to provide support and assistance to the ALS community. The foundation would like to thank all of those who have made donations such as this possible through their support of the Michelle Gargaro Foundation and their participation in our fundraising events.
The HEALEY ALS Platform Trial is enrolling people living with Amyotrophic Lateral Sclerosis(ALS) to test the efficacy of multiple investigational products. The Platform Trial is designed to decrease the time it takes to test new potential therapies and increase access to research forpeople living with ALS. One of the innovative features of the Platform Trial is that enrollment will continue as more investigational products are added. For more information about the Healey ALS Platform trial, see this article for links to general information and for FAQs about the trial.
The Michelle Gargaro Foundation announces that it has made a donation in the amount of $2,000.00 to the Healy Platform/Mass General ALS Clinic. The Healy Platform was launched in July of 2020. It offers a new and unique trial process designed to accelerate the development of effective treatments for people living with ALS. This process allows for more than one drug/treatment to be evaluated at the same time, also allowing for the greater sharing and coordination of trial test data and information. Assisting to help in the development of meaningful treatments for ALS is a primary target of support for [...]
The Michelle Gargaro Foundation has donated $1,000.00 in support of the annual ALS Walk to the local chapter of the ALS Association. This year’s walk is being held at the Mall of America on Saturday, September 16 th . The Michelle Gargaro Foundation wishes all walkers in the event a fun and rewarding day.
The 2023 Michelle Gargaro Memorial Golf Classic was held on June 9,2023 at Gopher Hills Golf Course in Cannon Falls, MN. Nineteen teams helped raise money for the ALS community and to help those living with ALS. The tournament was won by team Hellyer. Team Micek finished 2nd and Team R. Gargaro came in a close 3rd . All 19 teams golfed well. The Michelle Gargaro Foundation and Gargaro family would like to thank everyone who made this years’ event a success. Please check out the link below to see pictures from this years’ tournament.
Researchers at Oregon State University have announced that new therapy that stops the progression of ALS. The therapy is based on using Copper-ASTM, a compound that delivers copper specifically to cells with damages mitochondria. Full article
Read the latest news from the ALS Association's monthly newsletter September 2023 Local Newsletter: Many fall events are happening to support the mission of the ALS Association including the Walk to Defeat ALS.August 2023 Local Newsletter: Learn how you can join local walks to defeat ALS. Read Timothy's inspiring story on his battle with ALS.July 2023 Local Newsletter: Making an impact through its mission and upcoming events including golf classic and fall ALS walk.May 2023 Local Newsletter: Learn about ALS National Awareness Month and the recent approval of the FDA for tofersen, a new gene-based therapy.April 2023 Local Newsletter: [...]
The FDA advisory committee recently approved the use of AMX0035 for the treatment of ALS. Presented with the robustness of new evidence, the committee reversed their March 2022 vote overwhelming by a 7-2 vote. The ALS Association has publicly thanked both the FDA advisory committee and the entire ALS community for their hard work and advocacy. Read Full Article